Helpful Resources for Alzheimer’s Disease

December 1, 2015

(BrightFocus Foundation) Resources and information that provide products, services, and other support for people with Alzheimer’s disease and their families.

On this page, you’ll find:

Find Professional Services
Legal Assistance
Federal Government Programs and Services
Travel
Prescription Assistance Programs
Safety and Home Healthcare
Caregiving and Caregiver Support
Long-Term Care and Living Options
Hospice Care

Find Professional Services

American Academy of Neurology. Provides its Find a Neurologist service by subspecialty, name, or area.
http://patients.aan.com/findaneurologist
1-800-879-1960

National Adult Day Services Association. Use the website database to find adult day services in your area.
www.nadsa.org
1-877-745-1440

National Long-Term Care Ombudsman Resource Center. Click “Locate an Ombudsman” to find a professional to serve as an advocate for your family as you deal with decisions concerning long-term care for your loved one.
www.ltcombudsman.org
(201) 332-2275

Legal Assistance

ElderLawAnswers.com. Search for an attorney local to your area, or browse resources and information on financial and legal issues of aging and/or caring for an Alzheimer’s patient.
www.elderlawanswers.com
1-866-267-0947

National Center on Elder Abuse. Serves as a national resource center dedicated to the prevention of elder mistreatment, addressing topics such as assisted living and financial exploitation.
www.ncea.aoa.gov
1-855-500-3537

Federal Government Programs and Services

Alzheimers.gov. Provides free information about Alzheimer’s disease compiled by the U.S. Department of Health & Human Services including treatment options, Medicare coverage, and referrals to local community resources.
www.alzheimers.gov
1-877-696-6775

Alzheimer’s Disease Education and Referral Center (ADEAR). Provides current Alzheimer’s disease information and resources from the National Institute on Aging. Offers information for people with Alzheimer’s disease, their families, and professionals, including information on clinical trials.
www.nia.nih.gov/alzheimers
1-800-438-4380

Center for Medicare and Medicaid Services (CMS), U.S. Department of Health & Human Services. Provides the latest information and resources on government-sponsored health programs, including:

Medicare, which is a federal program that provides some coverage for people who meet certain qualifications. Alzheimer’s disease is not listed as a specific condition covered, but many aspects of treatment may be covered.

Medicaid programs, which are run by individual states.

Social Security Administration (SSA), which may also provide certain benefits to qualified individuals.

Veterans Benefit Programs, those who served in the armed services may qualify for certain Veterans Administration program benefits.

To find out what services are covered by Medicare, Medicaid, Social Security, or Veterans programs, visit www.brightfocus.org/alzheimers/financial-aid or call:
CMS at 1-800-633-4227, or SSA at 1-800-772-1213

National Institute of Neurological Disorders and Stroke, National Institutes of Health. Provides general information on Alzheimer’s disease, websites and some publications on its Alzheimer’s disease page.
www.ninds.nih.gov
1-800-352-9424

Travel

Transportation Safety Administration (TSA) Cares. Assists travelers with medical conditions, such as Alzheimer’s disease, as they prepare for travel prior to getting to the airport. Provides answers to questions about screening policies, procedures, and what to expect at the security checkpoint.
www.tsa.gov/travel/special-procedures
1-855-787-2227

Prescription Assistance Programs

BrightFocus maintains lists of prescription assistance programs for patients in treatment for Alzheimer’s.
www.brightfocus.org/alzheimersdrugassistance
Please call 1-800-437-2423 to order a print copy.

Safety and Home Healthcare

CarePathways. Created and maintained by nurses to provide access to healthcare information, products and services.
www.carepathways.com
1-877-521-9987

Caregiving and Caregiver Support

ARCH National Respite Network. Assists families to locate respite and crisis care services in the community, and provides a consumer guide for family caregivers, The ABCs of Respite.
http://archrespite.org/respitelocator
(206) 632-5208

Caregiver Resource Center. Provides information on caregiving, planning for long-term care services and employee assistance.
www.caregiverresourcecenter.com
(203) 861-9833

Dementia Friendly America. A multi-sector, national collaborative to foster communities that are equipped to support people with dementia and their family and friend caregivers by becoming “dementia friendly.”
www.dfamerica.org

Family Caregiver Alliance, National Center on Caregiving. Information, education, services, research and advocacy for those caring for people with chronic, disabling health conditions.
www.caregiver.org
1-800-445-8106

Latino Alzheimer’s & Memory Disorders Alliance. Empowers Hispanic and Latino caregivers and families of those afflicted with Alzheimer’s disease and memory disorders by providing education, skill building training and support programs. Also provides training programs to healthcare providers who work with the Hispanic and Latino communities.
www.latinoalzheimersalliance.org
(708) 395-5472

Meals on Wheels Association of America. Provides information on local meal delivery and group meal locations for seniors.
www.mealsonwheelsamerica.org
1-888-998-6325

National Caregivers Library. An extensive online library for caregivers with articles, forms, checklists and links to topic-specific external resources.
www.caregiverslibrary.org
(804) 327-1111

Pro Health. Offers search capability for finding support groups for caregivers of Alzheimer’s disease.
www.prohealth.com/supportgroups
1-800-366-6056

Long-Term Care and Living Options

A Place for Mom. Provides a searchable database of assisted living facilities with memory care services, and checklists to determine if that is the best option for your loved one.
www.aplaceformom.com/alzheimers-care
1-877-666-3239

LeadingAge. Provides a searchable database of aging services, including assisted living, nursing care, and home meal delivery.
www.leadingage.org
(202) 783-2242

National Center for Assisted Living. Represents long-term care providers; contains information for consumers on assisted living.
www.ncal.org
(202) 842-4444

Hospice Care

Caring Connections. CaringInfo provides free resources to help people make decisions about end-of-life care and services before a crisis. Topics addressed include advanced directives, and hospice and palliative care, among others.
www.caringinfo.org
1-800-658-8898
Multilingual Helpline: 1-877-658-8896