I have FTD Frontotemporal Dementia. A problem besides not being diagnosed with Dementia is being misdiagnosed. Statistics are not very clear because FTD is a rare type of Dementia that strikes the young, but reports have shown that up to 50% of those diagnosed with FTD were previously misdiagnosed with a mental illness such as bipolar. I was misdiagnosed and treated for bipolar for 6 years. Never mind the 17 pills including antipsychotics I was taking a day, I also had around 50 ECT’s and a VNS Vagus Nerve Stimulator placed in my chest with electric impulses going to my brain. I have created a Support for Dementia blog to help those with early stage dementia as well as create a public awareness of FTD. You can reach my blog through the Circle of Friends in “Dementia Today.”
Please visit Howard’s blog:
You can reach Howard on Twitter at
I have an exciting update to report. Howard Glick reached his donation goal and his movie, Howard’s Brain, will be made. Congratulations Howard and thank all who supported this courageous man in making his dream come true.
I made a friend on the Internet last year. His name is Howard Glick. Howard has a rare form of dementia called Frontotemporal dementia (FTD). FTD is a group of related conditions resulting from the progressive degeneration of the temporal and frontal lobes of the brain. These areas of the brain play a significant role in decision-making, behavioral control, emotion, and language.
What is remarkable about Howard is that he was misdiagnosed as a young man and given the wrong medication and treatment for years. During that time, Howard lost everything in his life because of this disease. His family, his friends, his job, everything. People did not understand what was happening to Howard.
Years later, Howard finally received the correct diagnosis: FTD.
FTD is a form of dementia, but instead of attacking memory like Alzheimer’s, it affects the frontal lobes of the brain, the part that controls your behavior and emotions; your personality. Take away your frontal lobes, the “social brain” and the you that is “you” ceases to exist.
FTD typically starts younger and affects people in the “prime of their lives.” No matter what age you are diagnosed, FTD is irreversible, untreatable, and incurable.
What Howard does have, that FTD can never take from him, is remarkable courage. Howard has turned this awful disease into his passion. Howard wants to raise awareness about this disease. Awareness will lead to education, education will lead to research, and research will lead to a cure — someday.
But the rest of the story begins here: Howard is the spokesman for others who have this disease. Most people with FTD do not know that they are sick. These people are unaware that they are ill and cannot communicate what they feel and think.
Howard is smart, eloquent, and perceptive. He not only knows he has FTD, he can talk about it . . . and he does.
Howard has a website, (http://earlydementiasupport.blogspot.com), a support group, a news story in Forbes magazine, Businessman’s Battle with a Rare Neurological Disorder, (http://www.forbes.com/sites/alicegwalton/2011/11/17/brain-ventures-a-businessmans-battle-with-a-rare-neurological-disorder/), and now he has a movie: Howard’s Brain.
You can read about Howard’s movie project here: http://www.kickstarter.com/projects/thinkfilm/howards-brain?ref=recently_launched.
Howard is looking for donations to complete the movie. I hope you will donate to this cause and the great courage shown by Howard at http://www.kickstarter.com/projects/thinkfilm/howards-brain/pledge/new?clicked_reward=false&logged_in=false&p=0&ref=recently_launched&v=u.
Howard is a real hero to me. We also share something in common. My mother has FTD. So, Howard speaks for her too.